Lynette and Marc Apodaca’s son Marc was diagnosed in 2007 with a diffuse intrinsic pontine glioma (DIPG). The couple quickly realized how little help there was in the form of treatment, information and support for the families facing this type of cancer. Much of the information found, from research online or medical journals, was very difficult to decipher because it was not in laymen terms. However, the family identified many families who were facing or who had faced the same problem and their willingness to help in anyway they can. Through their own independent research, these families found diets and alternative options that offered their child a quality of life that the medical providers did not offer. We want to work with families who are still searching and with families who have found alternative ways to help their child fight this insidious disease. We must work as a team as we are the only hope our children may have.
Their journey found that once parents and a community are faced with this cancer, each unknowingly foster a spirit of compassion, wisdom and charity and a willingness to share.